Effectiveness of teleassistance at improving quality of life in people with neuromuscular diseases
Source: Martinez et al. 2014 - Pubmed ID: 26055393
Setting: Spain, Multi-center and 2 hospitals
Study design:
CT-pro
Follow-up: 4 months
Patient group:
Sample size:
Total: 45
IG: 24
CG: 21
Inclusion criteria:
- Neuromuscular disease (Myashenia gravis, Facioscapulohumeral muscular dystrophy, Becker muscular dystrophy, Limb-girdle muscular dystrophy)
Type of technology:
Videoconsultation
- Cognitive-behavioral therapy
Intervention:
Intervention: Cognitive-behavioral therapy offered 7 times throughout 4 months through video.
Duration: 4 months
Add on: +
Control group: Usual Care
Clinical effect:
- WHO-Disablity Assessment Schedule II →
- Sickness Impact Profile →
- SF-36-social functioning →
Patient safety: NA
Patient experiences/
Staff experiences:
Patient experiences:
- 85% satisfied with telemedicine solution
- 83% would participate in similar videoconference projects
Staff experiences: NA
Investment: NA
Running:
Staff Resources
- Cognitive Behavioral Therapy
Organization: NA
Health care utilization: NA