Sugarsquare, a Web-Based Patient Portal for Parents of a Child With Type 1 Diabetes: Multicenter Randomized Controlled Feasibility Trial.

Source: Boogerd, E., et al. (2017) - Pubmed ID: 28830853

Setting: Netherland, 7 medical centers

Study design:

RCT (feasibility)

Follow up:

6 months

(12 months follow up data not analyzed in the study)

Patient group:

Sample size:

Total: 142 (105)

IG: 77 (54)

CG: 65 (51)

Inclusion criteria:

Parents of children with T1D below the age of 13 years

Type of technology:

Homepage

– Education

– Communication

– peer-support

Intervention:

Intervention:

Sugarsquare, a web-based patient portal providing online parent-professional communication, peer support, and disease information.

Duration: 6 months

Add on: +

Control group:

All children received care as usual, according to International Guidelines for Pediatric Diabetes Care

Clinical effect/ Patient safety:

Clinical effect:

– PSI (stresscore) →

– HbA1c →

 

Patient safety:

NA

Patient experiences/ Staff experiences:

Patient experiences:

– 59% (n=32) in IG used Sugarsquare.

– 11 (34%) logged in

repeatedly, at least once every 2 weeks, 9 (28%) logged in

incidentally (3 times or more, but under once every 2 weeks),

16 (41%) logged in once or twice

Staff experiences:

Of the total of 44 professionals, 34 (77%) logged in, and 32 (73%) logged in repeatedly.

Costs and organization:

Investment:

Development of webpage

Staff resources

– Education

Running:

Staff resources

– Communication with patients online

Organization:

NA

Health care utilization:

NA

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Information

“↑”: Statistically significant increase

“↓”: Statistically significant decrease

“→”: Statistically insignificant (no difference)