Sugarsquare, a Web-Based Patient Portal for Parents of a Child With Type 1 Diabetes: Multicenter Randomized Controlled Feasibility Trial.
Setting: Netherland, 7 medical centers
Follow up: 6 months
(12 months follow up data not analyzed in the study)
Total: 142 (105)
IG: 77 (54)
CG: 65 (51)
- Parents of children with T1D below the age of 13 years
Intervention: Sugarsquare, a web-based patient portal providing online parent-professional communication, peer support, and disease information.
Duration: 6 months
Add on: +
Control group: All children received care as usual, according to International Guidelines for Pediatric Diabetes Care
- PSI (stresscore) →
- HbA1c →
Patient safety: NA
- 59% (n=32) in IG used Sugarsquare.
- 11 (34%) logged in repeatedly, at least once every 2 weeks, 9 (28%) logged in incidentally (3 times or more, but under once every 2 weeks), 16 (41%) logged in once or twice
Staff experiences: Of the total of 44 professionals, 34 (77%) logged in, and 32 (73%) logged in repeatedly.
- Development of webpage
- Communication with patients online
Health care utilization: NA